Barbara Anne Barnes -

I can't tell you how excited I was to read this website about coccydynia. I know that sounds wierd but I thought I had something wrong that no one knew about. I have Muscular Dystrophy and I sit in a wheelchair at least 16 hours a day (or at least I used to). I have been in excruciating pain for 6 months. Tried physical therapy 2 days a week for about 4 months. It felt good while there but pain returned immediately. Now I am receiving acupuncture, novacain injections and recently an injection of Dextrose. This therapy has just started so it is too soon to tell.

The only thing that has helped, the only time I am close to pain free, is with vicodin. I am so depressed. The pain is so severe that it often drives me to tears. I can only sit for a few hours at a time and that is with pain medication, ice packs and a tens unit. Would love to hear from anyone who shares this horrible pain. Thanks for a place to share!!!

Barbara Anne Barnes

Updated 2000-03-30

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