Barbara - firstname.lastname@example.org
I am a 50 year old legal secretary. I have been suffering with low back/tailbone pain now for 7 years. It began with a fall in 1995 when I fell and broke my tailbone. At first the pain was occasional and I had trouble laying at night to sleep. Over the years it has worsened to the point where I cannot lay at all anywhere for longer than 10 or 15 minutes, which makes getting a night's rest impossible. I cannot lay on either side and if I lay flat, I have to pull my legs way up and practically lay like a folded letter in bed. Thank goodness I have an adjustable bed for that purpose. I have had 3 sets of 3 epidurals, a direct nerve block and have had my SI joint injected. The first two sets of epidurals were helpful, but the last set didn't do anything and neither did the SI injection. I, like everyone else on this page, have been to every type of doctor imaginable, had every test known to mankind (MRI's, CT scan, bone scan, X-ray) and they all come back negative. I have been told I have soft tissue or nerve damage (meaning they have no idea what's causing it).
I have tried Vioxx, Celebrex, and many other anti-inflammatories that did nothing. I have done the amitryptyline, but couldn't stand the side effects. I have also done the neurontin thing, which helped short term, but it eventually became ineffective too. I now am taking 30 mg. of MS Contin (morphine) with 10 mg. of Percocet twice a day, but am still not pain free. Nights are still awful. Most nights I sit on the edge of the bed and cry.
I'm finally seeing a specialist in coccydynia on December 6 after finding this site and realizing what the problem may be. I'm hoping he can help me. I'm at my wits end and don't know how I can go on with this much pain.