Coccydynia diagnosed in June 2000

Kelly - knutkc@aol.com

I had an accident in June 2000 involving a mountain bike. An X-Ray showed a large gap between my coccyx and sacrum and I had also displaced my coccyx. Since then I have been in considerable pain, when sitting, getting up, lying on my back, turning in bed and walking (I am short so if I stretch my legs it really hurts). I have not had a good night's sleep since the accident and frankly its a pain in the bum. Having seen a specialist (orthopaedic surgeon) who said I would have to learn to cope with the pain on painkillers for up to 3 years I was obviously heartbroken.

I am a very active person normally but have been reduced to shying away from all activities even swimming. I have also been suffering from lower back pain caused by over compensating the rest of my back. I have tried a ring and wedge but they only increase the sitting for a short length of time, I am on co-proxamol, voltarol and use TENS but they don't really work.

Since 2000 nothing much has changed. I still have a lot of pain when sitting, lying flat on my back, walking too fast or far (especially across rough ground or up/down hills), the pain is intolerable when going to sit or stand. All this even after undergoing 2 X manipulation under general anaesthetic and steroid injections (the last one on 15 November 2001) but only slight improvement then a quick return to normal. I have to give up most of my social life as I like going to eat out, the cinema, theatre and most sports. I have tried swimming but even this can irritate the coccyx.

I have joined the t-bones discussion group and regularly read Jon's web site, this has helped me psychologically due to having some support. I was offered the operation in August 2001 but decided to have another injection instead. I return to hospital on 18 January 2002 and I have decided to have the operation although I am fearful of the risks and that it may not work. I have read some positive feedback but on the whole the odds of success are low.

It looks like I will lose my job and with Coccydynia how am I going to get a job and somewhere to live. I have no idea what to do or who to turn to, but something will turn up! I hope!!

Anyway if anyone wants to know more or has any advice or just wants to chat please e-mail me at: knutkc@aol.com

Thanks for reading my story and the very best of luck to you all. Happy New Year.

Kelly

Updated 2002-01-13

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