Had spina bifida, coccyx now bent backwards

Amanda - ManaBme03@aol.com

My name is Amanda and I am 19 years old, living in Virginia. I fractured and dislocated my coccyx (tailbone) January 2003 and it is now January 2004, and it has been a year now that I am living with this pain. I was at work, which is at a nursing home, and I was taking a break. Well, I got up for something and then when I went for the chair, the chair slipped from underneath me and the next thing I knew it, I was on the floor in pain. I was in tears, and wanted to cry. I could only feel pain in my tailbone area. My parents came to my work and took me to the Emergency room in Lynchburg. I hardly move because of the pressure it was causing.

The only thing that makes worse on me is my lower back. When I was 18 months old, I was diagnosed with Spina Bifida. I was already going through some times with that, until I fell at work. I have been on at least 5 different medication to alleviate my pain, but it only help for a certain amount of time. I went to an orthopedic surgeon, Dr. Gondi and he tried therapy, and then he sent me to a spinal surgeon, which is Dr. Stem. Dr. Stem is the greatest doctor that I ever had. He has been my doctor ever since last March or so. I had times where when I got out of my chair, my whole area of my butt would go numb. I had good and bad days/nights. It would hurt the most during bad weather. I have been back and forth to my doctor for a year now and now I have to have surgery on it. The way they are talking is around next month in February sometime. The way my tailbone looks like is  an "L" shape towards the opposite direction, meaning its facing my colon area. My doctor told me that the area that was fractured and dislocated at is only hanging by cartilage. And my tailbone was right near my colon, which isn't good. I am nervous about my surgery because I am scared that I will be paralyzed. The reason why I am scared of that is because of my Spina Bifida that I had in the past. I am ready for this surgery, but then again I am not. Could anyone please help me out any. like tell me how they do the procedures, is it true about being paralyzed?? or anything else?? I would appreciate it. I am going to update from this page as soon as I get more report on myself.

Note from Jon Miles:

There have been hundreds of operations to remove coccyxes reported in the medical journals, and none of them has resulted in any of the patients being paralysed. The coccyx itself is below the end of the spinal cord.

Updated 2004-02-01

What is coccydynia? | Investigation and diagnosis | Treatment | Coping with coccyx pain | Find a doctor or specialist

Medical papers | Personal experiences | Links to other sites | Support groups | Site map