Gloria - firstname.lastname@example.org
Original posting, 2004-01-11:
I am wondering if any of you noticed your tailbone pain start with spinning classes [see below]. In January 2000, I was a regular cyclist and enjoyed spinning classes four times per week until I noticed that every time I got up off the bike, my tailbone hurt badly. I began doing the classes standing only and eventually had to give them up completely. I noticed my glutes were hurting and constantly tight as well.
My internist gave me an injection of Lidocaine and Depomedrol which helped me to be pain free for 6-8 months. However the pain came back. I was jogging for exercise and had given up the bike completely. Over the next three years I sought help from a chiropractor, rolfer, 2 physical therapists, and an acupuncturist, with slight short-term improvements.
I got great relief with three additional injections from my Internist and he eventually sent me to a pain specialist. This doctor agreed with the coccydynia diagnosis and said I also had piriformis syndrome. I have received bilateral injections of Botox in my piriformis muscles which have alleviated the constant spasms and my muscles have relaxed tremendously. I am seeing a physical therapist who specialized in the lower back. I have only seen her once so don't know yet if what we are doing will reduce pain. I still have terrible tailbone pain and am taking Ultracet daily. I have stopped all exercising for the time being, but an miserable because of it.
Has anyone had a situation similar to mine?
[Note taken from the web: Spinning is a high-energy, indoor stationary cycling program where the instructor takes participants on a "virtual" outdoor road race complete with hills, valleys, and finish lines.]
I am excited to share with you coccydynia sufferers who got this painful problem from biking or spinning classes, like I did, what has finally given me real pain relief.
A ganglion impar steroid injection. I learned about this procedure from this web site (paper by Jean-Yves Maigne). The ganglion impar injection first gave me just six hours of complete relief. But once the pain from the procedure healed (about a week to 10 days), and the steroid became effective, I realized I was completely pain free. After having coccydynia for five years, I am amazed at how nice it is to sit comfortably.
Now my doctor (C. Brad Sisson, M.D., Colorado Pain Clinic, Fort Collins, Colorado, see doctors and specialists in the USA) is exploring the most conservative approach to making this nerve block permanent if the pain returns. I will update you with the results of that procedure. Never give up hope, even though it may take a while to find your answer to your coccydynia.
The ganglion impar block lasted until the end of December, 2005. I sought help from a different pain specialist who tried radiofrequency nerve root ablation with steroid injection. I believe the relief I experienced was from the steroids.
Eventually, I was sent for a second opinion from a doctor located an hour and a half away. After driving to the appointment, I immediately had a dynamic x-ray done (the third since 2000) and it finally revealed what was causing my coccyx pain. My coccyx was bending at a 90 degree angle once my weight displaced it while sitting. The first two dynamic x-rays were completed after only sitting for a minute, not for an hour and a half which was enough time to show my weight displacing the two most distal bones and coccygeal ligament.
Every test I had done since 2000 was while I was either standing or laying down and not experiencing any pain, therefore, it showed that nothing was wrong with my coccyx. The frustration I experienced from those negative results knowing how much pain I was in, is difficult to describe.
I had a coccygectomy (by E. Jeffrey Donner, M.D., Surgeon, Loveland Surgery Center, Loveland, Colorado, see doctors and specialists in the USA) of the two displaced bones and consider the surgery to be 85% effective. I am thrilled to have my life back. I still take pain meds when traveling, but my daily activities are pretty normal. I am very happy the cause of my coccydynia was finally discovered, fixed and healed.