Michelle R. Bouchér - Michelle.Boucher@Woolpert.com
Original posting, 2004-01-11:
I am not sure if I am appealing to right person or not. At this point I am completely lost and feeling completely helpless to help my child. I have a 13-year old daughter who was diagnosed with psoriasis in October 2003, along with the psoriasis she has had a constant pain right on her tailbone often making it difficult (sometimes impossible) to move about or get up and down.
She has been for X-rays, MRIs, and numerous blood work studies. She has been to see her Dermatologist, Pediatrician, Orthopedic Surgeon, Pediatric Rheumatologist (UNC-CH) and Physical Therapist. No one can seem to figure out what the problem is or what we should do about it. They keep throwing drugs at her - she is on tons of different steroids (that she has to apply throughout the day) and she has been on Naproxen (no effect), Ibuprofen (no effect) and is now on Vioxx (no effect and making her sick).
I am desperate to find someone that might be able to help and even more has time and wants to. If there is anything you can do or suggest I would be grateful.
I apologize for taking so long to respond. My daughter has had her coccyx removed and I honestly wanted to make sure there was an improvement before I responded to anyone's questions and/or advice.
No, it turns out there is no correlation between the psoriasis and the coccyx problem she was having, except that it would appear that the bicycle and skateboard accident may have created/caused both.
She had her coccyx removed and immediately went from describing her daily pain as 8-10 to a 2-3 . . . that very day!! The surgeon was one of the best doctors that I had to deal with throughout the entire ordeal - and that isn't just because he helped find the problem. He is genuinely a great doctor with a great bedside manner (didn't think they existed anymore). Anyway, his name is Dr. Leon A. Dickerson, Jr. (Dr Dickerson is now retired, but recommended Dr. Ed Hanley, see list of doctors and specialists, North Carolina)
I am grateful for all the information out there in regard to the coccyx because I don't think the specialists and doctors we were seeing would have ever figured it out. I don't know if my information helps you at all, but again I did want to respond and let you know my findings. Thanks again!!