Hysterectomy didn't cure the pain - please help

Pam - gunnpam@hotmail.com

I am a 28 year old female and I have been suffering with severe coccyx pain since December 28, 1995. I woke up one morning and for some unknown reason my tailbone started hurting. I have a very high tolerance for pain, so I just tried to ignore it thinking it would go away. Finally about 4 months later the pain just got too bad. I couldn't stand for more than a few minutes, or lay flat on my back, or when I sat I had to sit on my right side.

I was taking any kind of pain relief medicine over the counter, aspirin, tylenol, anything and everything just so I could ease the pain a little to get through the day. I went to my family doctor and told him what was going on. He just referred me to a chiropractor. Well he said there was nothing that he could do for me either and sent me to an arthritis doctor. Once again he could do nothing for me either.

I felt like it was all in my head and that they were just passing me along to get me out of their way. Since April 1996 I was having some female problems and the doctor told me that if I had a hysterectomy that it would take care of the tail bone pain. Well I had the surgery in hopes that I would be free of pain, the only thing I was, was a 22 year old woman that can no longer have children, with tailbone pain.

I have been to 3 family doctors, chiropractor, arthritis doctor, nerve doctor, bone doctor, pain clinics, pain management doctors, I have had MRI, CAT scans, nerve tests, bone tests, and last but not least I was just referred to a psychiatrist about two months ago to learn how to deal with my pain. Dealing with the pain is not an issue with me, I have been doing this for the past 8 years of my life. I want to get rid of the pain. I am tired of the doctors looking at me like I am crazy when I try and explain to them what is wrong.

I have been on so many medications that it has caused A LOT of stomach problems. I try and explain this to the doctors and they do not listen to me. I try to tell them that I can feel the bottom part of my tailbone sticking out and I do not think it is normal, but still they do not listen. I am not sure what I can do or if anything, so if anyone can give me some advice I would be forever grateful.

Thanks so much... Pam

Updated 2004-05-16

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