The windy city needs help too

Susie - suzcat2@sbcglobal.net

Posted 2006-11-05

Hi -

My name is Susie and I've been suffering on and off with tailbone pain for over a year. It started out of the blue in August 2005. My doctor said he thought it was Coccydinia and prescribed Gabapentin but ordered tests to make sure. I had x-ray, CT, MRI, gyne check, rectal check, colonoscopy, all of which came out fine. I had a cortisone shot and even went for acupuncture. By mid-October I was feeling better, as long as I took the Gabapentin regularly.

Then April 2006 the pain came back with a vengeance. It's always worse in the morning when I first get out of bed and seems to be more on the left side. The doctor suggested I see a neurosurgeon to see if something is pressing on a nerve. I told the neurosurgeon that I felt pretty good from mid-Oct until April and it all started again. The neurosurgeon looked at all my films and agreed that I have Coccydinia and suggested that I try physical therapy or another cortisone shot. After 8 weeks or PT and a cortisone shot with not much improvement, it was suggested that I try a chiropractor. He has helped some, especially with incorporating massage therapy, but I still have my moments. I haven't been having muscle spasms as much which were worse than any pain. I still have trouble driving though - I get behind the wheel and after about 1 block I have to get out and stand up.

Most sufferers complain about sitting, but my pain not only affects sitting, but standing, walking and bending. It's like a pulling or stiffness on the left side of my rear. Sometimes just walking around the house I have to stop after every few steps. Then after a couple of hours of moving around I loosen up a little. The neurosurgeon said there are so many ligaments on your tailbone and that is where my pain is coming from.

This website is so informative and helpful with the only problem being that there are no doctors or specialist listed for the Chicagoland area or the State of Illinois for that matter. I'm wondering if anyone else has symptoms similar to mine and if anyone knows any doctors in Illinois that specialize in this field. Any help would be appreciated. You can email me at suzcat2@sbcglobal.net.

Thanks.

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