Damage to levator ani muscle

Viviane - vsbsf@verizon.net

Posted 2006-06-11

Hello.... My name is Viviane and I live in the United States of America. Just about 18 years & many, many Dr.'s I finally found the right one for me. After being with him for just a few months and trying different meds. he talked to me about a Surgical Procedure called releasing of Levator Ani muscle and reconstructive surgery in my pelvis where necessary. With the use of my computer, talks with him, reading different books, and understanding the situation better than I did, I realized that this was going to be the only way for me to get away from this horrible pain that I've endured all these years.

I have taken so many meds in the hopes that one would be a miracle cure for me, but to no avail. I'm now 76 years. old and have suffered with this pain for almost 20 years of my life and slowly getting sadder and sadder. I couldn't see my life ending like this so I fought my way through the system of calling all the hospitals in my city and finally found this wonderful Dr. who's changed my life for the better. His name is Nathan Guerette, and he's an ob/gyn and also a Urogynecologist at Pennsylvania Hospital, the nations first hospital. It was originally built as a hospital for having babies, and now is still used for the same with the addition of so many other things that can go wrong in a women's body.

I feel very fortunate to have found this Dr. and before I had this surgery on June 1st 2006, I asked him what he was doing in 1988 and he said he was still in college. Well my answer to him was I had to wait for you to grow up, go to medical school, find yourself the right hospital to work in and now I'm thrilled to have waited for him.

He said he can help me and in time I know that he will. The surgery went well, and now I'm healing and thanking God all the time for allowing me to find this wonderful Dr.

In June 1988 I fell down my living room steps and we feel that I either tore or the trauma of the fall caused extensive scarring of my levator ani muscle (a muscle that is shaped like a hammock at the bottom of your pelvis and hold up the bladder, rectum, and urethra). It became very scarred and caused pain out of this world for me.

I hope that I can help women out there, some of whom are too embarrassed to tell their Dr. about their pain and therefore suffer in silence. Certainly embarrassment plays a big role in many women not telling their Dr. but there is help out there, I know.

Thank You for allowing me to tell my story and if anyone would like to contact me, my e-mail is vsbsf@verizon.net.

God Bless Doctors

Viviane

Update, 2006-11-26

I have Pelvic Floor Disorder, Proctalgia Fugax, and lately I've not been doing to well. I did find a rectal specialist, a new pain doctor and a Neurologist and they are trying to find some way to keep me comfortable. Taking narcotics isn't good for me at my age, 76. I live in Phila. Pa.

Does anyone have this condition and can you help with some suggestions as to where to go and what can be done for this awfully painful condition? Presently I'm using Nifedipine with valium 5 mgs. and it's not giving me much help. Is there someone out there who can help me??? Thank you for listening,.

Sincerely, Viviane

Update, 2007-03-25

Hello.... my name is Viviane and I live in Philadelphia, Pennsylvania. and I've written to you before and wanted you to know how far I have come since you last heard from me. I have met so many people, men and women on this site and we e-mail back and forth to let each other know how we are doing.

Well, I did find this Urogynocologist at a large hospital in my city and I had 2 surgeries with him, I suffer from Proctalgia Fugax which is spasms of the Levator Ani Muscle, which is attached to both ends of the coccyx, it's a hammock and it holds up 3 organs, bladder, urethra, and rectum.

My first surgery gave the Dr. the chance to peel back part of this muscle to make it less tight, but after recoup, we found that I still had pain in my rectum, and he offered to place the Interstim Implant inside of me for possible pain relief, but after wearing it for 3 weeks I had to have it removed as the pain was worse.

So, out it came and he looked at me and said "I don't know what to do for you anymore" and he wanted me to see a pain specialist, and I was lucky enough to find one in the same hospital and so far I'm on Ultram 100 mgs ER and I take 2 before I go to bed, and when I wake up I have no or very little pain, I can go 16-18 hours before I take 1 50 mgs. Ultramand I can take one more through the day (6 hours), no more than 300 mgs a day and I'm feeling much better.

Also on March 23 he wants to inject my rectum (oh whoopee) with something that will give me more pain relief. I have been in pain for almost 19 years now and I'm exhausted, I'm now 77 and I made up my mind that I won't take this lying down, that I'll continue to search for a Dr. who'll help me with this pain and here I am with a new one, a Pain Specialist, maybe he's my miracle, hope so.

I thought all these years it was my coccyx that was causing this pain, but no, it Called Pelvic Pain Syndrome, if any of you ladies or men suffer from this don't hide, come out and seek help, it's out there, I'd love to hear from anyone who like more info. Just e-mail me at vsbsf@verizon.net, Thank you all so much for listening and if I've helped just 1 person I'm thrilled. I talk to people all over the world and it's very encouraging for me to know that I'm not alone.

Bye for now and stay well all of you.

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