Surgery for pilonidal cyst, then tailbone pain

Danielle - Danielle.Lamb@Isomedia.com

Posted 2008-11-02

It all started with a little pain when I got into the car after work Friday March 30, 2007. Come Tuesday night the pain was so bad I was crying on the phone at 3:00 am with a nurse at the local hospital help line. Upon trying to self-diagnose, a Pilonidal cyst on my tailbone burst, and I felt instant relief.

I went to the doctor the next morning and got on antibiotics and was told I would need to see a surgeon. Over the next few months I saw two doctors and two surgeons whom all told me I would have to have the cyst removed.

I suffered with pain, which the doctor said was caused by scar tissue, until I could afford the surgery a few months later on August 2, 2007. The surgery seemed to go fine, aside from a minor infection which cleared up after taking out a few stitches.

After a month I still was not getting better so I went back to my surgeon. He said I must have bruised my tailbone. I of course argued how this could happen considering the four inch incision down my backside. Either way I had to wait 2-3 months and come back.

At this point I found this website and started considering my options. I started to see a naturopathic and was getting manual coccyx adjustments (she said my tailbone was curling under), and acupuncture. Both seemed to help lessen the achy pain, but I still couldn't live my life normally without aggravating it.

I finally gave in and went back to my surgeon who sent me in for a regular and cultured MRI, both which provided no help, so I was referred to a pain specialist (aka anesthesiologist). After two cortisone injections in April and June 2008, I was advised to seek therapy with a pain management specialist.

I've been on an antidepressant since June, and basically have been a Hindu cow. This last week I've gone to the gym twice, taking it easy and only doing 20 minutes on the treadmill, and I am sitting here writing this in pain.

I am at my wits end. I know it could be worse; I've read some of your stories and feel great sympathy for your pain. I used to be very active, since April 2007 I've stopped working out, gained about 40 pounds, and got a divorce. I pray every day for a cure.

- Danielle

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