Nicky - firstname.lastname@example.org
I have just had my first child back in January 2009 and had a normal birth; however, my second stage labour was rather long which I spent on my back. After the usual aches and pains of labour I had been left with rather severe coccyx pain which has been diagnosed as coccydynia. It has taken me numerous doctors' visits and hospital referrals to get this diagnosis. I have been told that nothing can be done and that time will heal, but after nearly a year and only a slight easing of my pain, I am now on the "GP/Hospital referral merry-go-round"
Whilst I was pregnant, I tore all the ligaments in my ankle and was on crutches for a while, this triggered SPD Syphysis Pubis Dysfunction which I have been advised will return in further pregnancies this time earlier and more severe… can't wait!
I returned to work in August after being on maternity leave and I sit at a desk all day and my pain is getting worse. I had been referred to a physiotherapist and she advised doing core muscle exercises and I have had the cortisone injection but with no effect. After many physio appts, we also tried acupuncture, glad to hear that some people have had a positive result from this. However I had 4 sessions of acupuncture with no results at all.
I have now been referred to the Pain Clinic at my local hospital (I live in Portsmouth in the UK) and I am now waiting for an appointment to have another injection in my spine, this time under ultrasound (more exact apparently…) He said that he may also try a cryo injection in my ganglian nerve?????
I can't sit without leaning to one side; it's the same with driving. I cannot recline as it is extremely painful to do so. Up until about 5 months after my son was born, I was having to breastfeed lying down as I just couldn't sit for that long without severe pain. I have been prescribed Amitriptyline (an anti-depressant) for the pain. This had no effect other than to make me constipated. We have also tried Co-codamol (made me feel very weird and spaced out!) and I am now taking Tramadol, this has a minor effect, but makes me feel nauseous
I am also waiting to have an x-ray on my back. I was referred ages ago by my GP to have an x-ray but when I got there, they wouldn't do it as it was "unnecessary radiation on my reproductive organs". The consultant at the Pain Clinic has booked me to have this x-ray at last! So, it will be interesting to see what damage has been done.
I have been told numerous times that coccydynia is very hard to diagnose and even harder to treat. They advise waiting and letting it heal on its own… Pretty crap eh? My son is almost a year old now and I am not much better now than I was when I just had him. I have been told that the hospital have to try every avenue first before they even consider surgery. And even then, surgery comes with its own risks and consequences…
I just wish they had done my x-ray sooner. I read my consultant's notes after him examining me at the Pain Clinic and it said "severely deformed" yikes!
I wish I could be more positive about the whole thing, but my pain has been so bad I feel I will never be the same again.
I don't mind being contacted if you wish to discuss things further, I think it would be good to hear another story as I know no-one that has experienced this or has even heard of it.
I wish you all the best of luck in your recovery