Success so far with injection

Irene, Germany - ocean3@freenet.de

Posted 2012-07-15

I'm female, 44 years old, living in Germany – in its oldest town called Trier. I was about 40 years old, sitting on a wooden chair giving private lessons and all of a sudden I got a severe pain in my bottom.

The slightest movement of my bottom increased the pain. I tried to get up - but getting up was the hardest part - it was nearly impossible: I got an unbearable acute pain at the moment when my bottom lost contact to the chair…

While sitting the pain increased slowly but steadily. As I couldn't bear sitting anymore, I had to get up at some time… I started developing different strategies to prevent this acute pain – in vain…

I tried to ignore this severe pain for a while: it came all of a sudden – it could go away all of a sudden too, I thought…

But ignoring the pain, it started following me into my bed… It was impossible to turn over from one side to the other… I couldn't sleep anymore…

It could have been helpful to sit only on one side of the bottom (and to get up from this position). I found that out much later unfortunately.

Well, I started consulting M.D.'s. I thought to have a problem with my sacroiliac joints. I went to neurosurgeons and orthopedists. I was ignored. Once I got an injection – but it didn't help.

One neurosurgeon wanted me to consult a psychiatrist… Well, as long as I'm in the position to ignore such advice it doesn't bother me too much.

In 2011 – after 3 years of incredible pain! - I found a neurosurgeon who was willing to give me a deep injection into the sacroiliac joints – a sort of diagnostic injection as a test for a following denervation of these joints. Well, even these 2 injections didn't help…

At the end of 2011 I consulted the next orthopedist and I changed my strategy: I told him that me myself wasn't sure anymore to have a problem with my sacroiliac joints and I showed him that I could sit bent foreword and bending slowly backwards I told him when the horrible pain starts… And I told him that I could sit much better sitting on only one side of my bottom.

He was sure that I was suffering from coccydynia. 2 x-rays in the lying position were made. He didn't seem to know that a sitting position is required… Here in Germany it's quite difficult to find MD's who are willing to do MRI's…

All he said, was, that my coccyx seems to be quite long, that one could cut it off but the results weren't good. I asked him to make a diagnostic injection as a preparation for a following denervation (procedures he provides officially (for the lumbar spine)… He refused…

I didn't want to give up so quickly and started making some phone-calls. I finally found an interventional radiologist in a clinic of my hometown who was willing to give me an injection under CT-controll into my coccyx. And he wanted an MRI and my GP was willing to help me…

Here are my x-rays and my MRI (coccyx segments numbered in blue):

x-ray MRI MRI detail

The orthopedist didn't zoom into the x-ray. Even the x-ray shows that the tip is slightly dislocated (even standing!!!) My coccyx consists only of two parts. And I don't have joints – as most people have but some sort of discs that are degenerated…

He told me that he injected a local anesthetic to numb the region and that this might help me some hours. My pain would come back - but the cortisone would start doing its work later and might help me for about 3 month…

I got that injection on the 7th March. I was immediately pain free. After about 5 hours the pain came back – as unbearable as before. In the following days I felt some relief and it got better every day. After one month I tried to ride on my bike for 10 minutes and the pain came back… But even this improved. It's mid July now and I'm pain free in my everyday life. Even little tours on my bike are possible.

I'm very glad about this improvement. But I don't sit 8 hours a day (I'm not working) and I didn't do longer trips on my bike…

The radiation from CT scans is considerable! Unfortunately I couldn't find an MD using ultrasound in my region. My insurance wouldn't pay an open MRI…

I got a lot of radiation when a uterine fibroid was embolized (3 month ago). Unfortunately I didn't google the exact amount of radiation before the procedure … In my opinion I shouldn't accept too many further CT scans anymore. In case the pain comes back I'm going to try to find a surgeon who cuts off the tip.

I hope very much that my story might be helpful for someone. I felt very bad. I had the impression I was the only one on earth with this strange problem. And the MD's didn't treat me very nicely too…

Kind regards from Germany,

Irene

Update, 2014-01-19

I'm (46) having extreme pain in my coccyx when sitting since 2007…

In March 2012 I got an injection under CT-control and immediately I was pain free. It lasted about 15 months - then, very slowly, the pain came back. It is nearly as strong as before.

I planned, as a next step, to try to destroy the nerves with heat but I couldn't find anyone, willing to do it.

The doctor who performed the injection doesn't do this kind of treatment anymore. I could convince him to do dynamic x-rays (sitting). Although I feel that my coccyx is slightly moving when I'm sitting this isn't visible in the x-rays. The range of movement might be too small - one millimeter or so. Sitting for a while, the skin gets partially numb. Unfortunately the pain remains.

As my coccyx isn't visually moving in an x-ray it might be impossible to find someone who's willing to cut off the tip. And in case the resection of the tip isn't sufficient it might be totally impossible to convince someone to cut off the rest. Well, and finally I'm not sure if I'm willing to take the risk of a resection, too.

I contacted the orthopedic unit of a clinic in Bonn (Universitätsklinikum Bonn). I sent them a pic of my coccyx. They told me that it could be worth a try to coagulate the nerves - but yet they didn't call me back.

It would have been a final try because the amount of radiation is too high - at least for me because I'm suffering lots of orthopedic problems that might require this kind of treatment… And due to an embolisation of a myoma I already got a very high dose of radiation…

Theoretically it's possible to get these treatments with a MRI. But here in Germany you need to be a private patient.

A radiologist of the Stiftungsklinikum Koblenz was willing to do it with an MRI. So private patients or those facing no financial problems could go there.

I don't know what to do at the moment… Well, I'm going to avoid sitting as before, lol...

Kind regards,

Irene

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