Coccygectomy: so far, so good

Susan from Maryland

Posted 2012-02-12

Thank you, Jon, for creating and maintaining this wonderful resource, and to all of you who are willing to share your experiences. I have turned to this many times in my 2-year quest to understand the cause of my pain, find a healthcare professional who can help me, guide my decision to have the coccygectomy, and for encouragement in those dark days after the surgery when I thought I might spend the rest of my life in severe pain (and intense boredom).

Today, February 10th, is 6 weeks after my December 30th coccygectomy. The first 3-4 weeks were pretty awful, but I am now confident that my pain will definitely be at a manageable level within a few more weeks. I stopped the narcotics yesterday and I'm OK so far with OTC stuff. I had a follow-up with the surgeon on Monday and he gave me the go ahead for swimming. I have been swimming twice since then and it was a joy. I think activity of any kind goes a long way toward helping us feel human again. I don't sit very long, even with a cushion, but that will come in time. The big finish will be when I can drive a car without pain.

Ten days ago I purchased a kneeling chair from the Healthy Back Store. I debated some time about this because it is a bit pricey. But it has turned out to be a good alternative to sitting for me. I am now able to use it for meals, the computer, knitting, etc. Fortunately, there is a store near us, so I was able to try it out for 20 minutes or so in the store first. If you think your knees are up to it, I recommend it. Even after I fully recover, I'll probably still use it because it is supposed to improve posture. (although, I have found that I can slouch just fine in it)

Healing takes a long time, and the path to pain-free is asymptotic, so hang in there, baby yourself when you have to, and push yourself a little bit when you can. Even us old people (I am 65) do get better eventually. I wish the best for all of you.

My surgeon is Dr. David Cohen, Department of Orthopaedic Surgery, Johns Hopkins Medicine (see Doctors and specialists in the USA, Maryland). He took a conservative approach and did not agree to a coccygectomy until he had satisfied himself that it would have a high probability of alleviating my pain.

Susan from Maryland

What is coccydynia? | Investigation and diagnosis | Treatment | Coping with coccyx pain | Find a doctor or specialist

Medical papers | Personal experiences | Links to other sites | Support groups | Site map